Hyperledger HCWG #patient-member-subgroup 8/31 meeting agenda and time change | #patient-member-subgroup #donormilk


Marissa Iannarone
 

Hello Everyone,

This email is to provide a quick update and agenda for our 8/31 patient subgroup call. Please be advised that we have shifted the time of the 8/31 call to 10-11 PDT for scheduling reasons. Meeting details can be found on the Hyperledger Community Calendar.

For the 8/31 patient subgroup meeting, we will have Naomi Bar Yam, Executive Director at Mother's Milk Bank Northeast, joining us again. The aim of this meeting is to ensure that we understand all stakeholders in the donor milk system, the regulatory requirements of the system, and the current information management needs and requirements, including the information/feedback from NICUs regarding babies that receive the milk and their diagnosis. All of this will ensure that the network being built is compliant.

The agenda is as follows:
10:00-10:10am - subgroup updates and current state of donor milk proof of concept
10:10-10:50am - Q&A with Naomi - specific questions to address:
  • Who are all of the participants in the donor milk system (donor banks, hospitals, regulators)?
  • What legal/regulatory standards are we working with? What does the paperwork load look like to meet these requirements?

  • What are the roles that regulators and public health entities play in the process?
  • What data are already being collected for the donations and movement of the them?

  • What is a list of key attributes to have inside the network on the participants in the donor milk system and the milk itself? What is important for the milk bank to be able to query from the network?

10:50-11:00am - wrap up and next steps

If you have other questions that are not covered above, I have added a "SME Questions and Responses" topic to Section 2 of the business case wiki where you can add them or send to me and I'll add them. I have some from previous discussions that I will be adding this week.

Finally, on the 8/24 Healthcare-WG call last Friday, since there wasn't a preset agenda, we were able to use this time to discuss donor milk use case more. Notes can be found on the Healthcare-wg wiki and the recording will be made available shortly at the same location.

Let me know if you have any question.

Best,
M

Marissa Iannarone
Associate with Forum Solutions LLC
phone number: +01 (360) 525 4961
email: mari.iannarone@...



Marissa Iannarone
 

Hi All,

A quick reminder that the patient subgroup meeting is tomorrow at 10am PDT. Let me know if you have any questions and I'm looking forward to the discussion.

Best,
Marissa

Marissa Iannarone
Associate with Forum Solutions LLC
phone number: +01 (360) 525 4961
email: mari.iannarone@...



On Mon, Aug 27, 2018 at 5:02 AM Marissa Iannarone <mari.iannarone@...> wrote:
Hello Everyone,

This email is to provide a quick update and agenda for our 8/31 patient subgroup call. Please be advised that we have shifted the time of the 8/31 call to 10-11 PDT for scheduling reasons. Meeting details can be found on the Hyperledger Community Calendar.

For the 8/31 patient subgroup meeting, we will have Naomi Bar Yam, Executive Director at Mother's Milk Bank Northeast, joining us again. The aim of this meeting is to ensure that we understand all stakeholders in the donor milk system, the regulatory requirements of the system, and the current information management needs and requirements, including the information/feedback from NICUs regarding babies that receive the milk and their diagnosis. All of this will ensure that the network being built is compliant.

The agenda is as follows:
10:00-10:10am - subgroup updates and current state of donor milk proof of concept
10:10-10:50am - Q&A with Naomi - specific questions to address:
  • Who are all of the participants in the donor milk system (donor banks, hospitals, regulators)?
  • What legal/regulatory standards are we working with? What does the paperwork load look like to meet these requirements?

  • What are the roles that regulators and public health entities play in the process?
  • What data are already being collected for the donations and movement of the them?

  • What is a list of key attributes to have inside the network on the participants in the donor milk system and the milk itself? What is important for the milk bank to be able to query from the network?

10:50-11:00am - wrap up and next steps

If you have other questions that are not covered above, I have added a "SME Questions and Responses" topic to Section 2 of the business case wiki where you can add them or send to me and I'll add them. I have some from previous discussions that I will be adding this week.

Finally, on the 8/24 Healthcare-WG call last Friday, since there wasn't a preset agenda, we were able to use this time to discuss donor milk use case more. Notes can be found on the Healthcare-wg wiki and the recording will be made available shortly at the same location.

Let me know if you have any question.

Best,
M

Marissa Iannarone
Associate with Forum Solutions LLC
phone number: +01 (360) 525 4961
email: mari.iannarone@...



Brian Ahier
 

I missed this note, so there were four of us waiting in the Zoom meeting for the last 15 minutes. Unfortunately I will have to miss the call today.

Have a great weekend,

Brian Ahier

On Mon, Aug 27, 2018 at 8:02 AM, Marissa Iannarone <mari.iannarone@...> wrote:
Hello Everyone,

This email is to provide a quick update and agenda for our 8/31 patient subgroup call. Please be advised that we have shifted the time of the 8/31 call to 10-11 PDT for scheduling reasons. Meeting details can be found on the Hyperledger Community Calendar.

For the 8/31 patient subgroup meeting, we will have Naomi Bar Yam, Executive Director at Mother's Milk Bank Northeast, joining us again. The aim of this meeting is to ensure that we understand all stakeholders in the donor milk system, the regulatory requirements of the system, and the current information management needs and requirements, including the information/feedback from NICUs regarding babies that receive the milk and their diagnosis. All of this will ensure that the network being built is compliant.

The agenda is as follows:
10:00-10:10am - subgroup updates and current state of donor milk proof of concept
10:10-10:50am - Q&A with Naomi - specific questions to address:
  • Who are all of the participants in the donor milk system (donor banks, hospitals, regulators)?
  • What legal/regulatory standards are we working with? What does the paperwork load look like to meet these requirements?

  • What are the roles that regulators and public health entities play in the process?
  • What data are already being collected for the donations and movement of the them?

  • What is a list of key attributes to have inside the network on the participants in the donor milk system and the milk itself? What is important for the milk bank to be able to query from the network?

10:50-11:00am - wrap up and next steps

If you have other questions that are not covered above, I have added a "SME Questions and Responses" topic to Section 2 of the business case wiki where you can add them or send to me and I'll add them. I have some from previous discussions that I will be adding this week.

Finally, on the 8/24 Healthcare-WG call last Friday, since there wasn't a preset agenda, we were able to use this time to discuss donor milk use case more. Notes can be found on the Healthcare-wg wiki and the recording will be made available shortly at the same location.

Let me know if you have any question.

Best,
M

Marissa Iannarone
Associate with Forum Solutions LLC
phone number: +01 (360) 525 4961
email: mari.iannarone@...